Grand Marnier family gives $5.8m to cure disorder

The Marnier Lapostolle Foundation, founded by the family responsible for Grand Marnier liqueur, has awarded a $5.8 million grant to help scientists find a cure for a rare genetic disorder.

alexandre-marnier

Alexandre Marnier Lapostolle created Grand Marnier in 1880

It is the largest private grant ever made to the research of Angelman Syndrome – a neuro-genetic disorder in which the person affected is missing a functional gene on the maternal 15th chromosome.

This condition results in balance issues and motor impairment, with some patients unable to walk or talk. Debilitating seizures accompany the syndrome. However those affected have structurally normal brains.

Scientists believe that if they can either replace the missing or mutated gene, or turn on its normally silent, paternal mirror image copy in the brain, the symptoms of the disorder could be reversed. Angelman Syndrome affects 1 of 15,000 people, or about 350,000 worldwide.

Inspired by a family member who has a child with Angelman Syndrome, the Marnier-Lapostolle Foundation has awarded the sum to The Foundation for Angelman Syndrome Therapeutics (FAST) in the hope of finding a cure faster.

A team of 24 scientists and pharmaceutical companies from five different laboratories at four universities across the US have been assembled to help search for treatments and ultimately a cure for the disorder.

“We are confident that a treatment and cure is possible in just a few short years”, said Paula Evans of FAST. “Money and time are the only things that stand in our way. The Marnier-Lapostolle Foundation has given us a great gift to accelerate our work and hope.”

The team has a two-year plan to complete pre-clinical testing of four potential treatments in order to move them through human clinical trial and ultimately federal Food and Drug Administration approval.

“To be part of the scientific effort to bring effective therapeutics to the lives of those who struggle with Angelman Syndrome will be an incredible legacy of our foundation,” said Alexandra Marnier Lapostolle de Bournet of the Marnier-Lapostolle Foundation.

Alexandre Marnier Lapostolle created Grand Marnier in 1880. Earlier this year, Gruppo Campari agreed to buy Société des Produits Marnier Lapostolle (SPML), the makers of Grand Marnier, for €684 million ($760m) in what it called a “friendly takeover”, taking Grand Marnier into the Campari portfolio.

3 Responses to “Grand Marnier family gives $5.8m to cure disorder”

  1. Cecil says:

    Didn’t they sell off Grand Marnier ?

  2. Diane Harvey says:

    Thank you for your generous donation to FAST. Because of people like you, Paula Evans, and all the wonderful researchers and doctors angelman will have a cure!

Leave a Reply

Your email address will not be published. Required fields are marked *

Please note that comments are subject to our posting guidelines in accordance with the Defamation Act 2013. Posts containing swear words, discrimination, offensive language and libellous or defamatory comments will not be approved.

We encourage debate in the comments section and always welcome feedback, but if you spot something you don't think is right, we ask that you leave an accurate email address so we can get back to you if we need to.

Subscribe to our newsletters

Business Development Manager

Bashall Spirits
Lancashire, UK

Territory Manager - Edinburgh

Cadrona Distillery
Edinburgh, UK

Territory Manager - London​

Cadrona Distillery
London, UK

Business Development Manager

Lucozade Ribena Suntory
UK

Customer Marketing Manager

Bibendum
London NW1, UK

Export Assistant Co-ordinator - Maternity Cover

Speciality Drinks
Whitby Avenue, London NW10 7SF, UK

Customer Services Administrator - On Trade

Speciality Drinks
Whitby Avenue, London NW10 7SF, UK

Events Assistant

67 Pall Mall
London, UK

Fruit Focus 2019

East Malling,United Kingdom
17th Jul 2019

International Bulk Wine and Spirits Show

San Francisco,USA
23rd Jul 2019

The Wine Show Chelsea 2019

London,United Kingdom
18th Oct 2019
Click to view more

The Global Riesling Masters 2018

View Results

Global Chardonnay Masters 2018

View Results

Click to view more